Parents of children with Cerebral Palsy (CP) needed for research study

Overview:

We are inviting parents of children with Cerebral Palsy (CP) to participate in the The READY study: Resources and Education on neurodevelopment At time of Discharge of Your infant.

This study is being conducted by researchers at the INFANT Research Centre, University College Cork, and the Cerebral Palsy Parent Advisory Group (CP-PAG).

We are inviting parents of children with CP to take part in a short, anonymous survey (< 5 minutes) to learn about your experience of the information and education you received about your baby’s neurodevelopment, including awareness of potential early signs that may indicate a need for further assessment and support before leaving hospital.

Who are the CP-PAG: We are a group of parents who represent the voices of families living with Cerebral Palsy across Ireland. In partnership with the INFANT Research Centre (UCC), we help ensure research conducted reflects the realities of our lives. One of our deepest concerns is ensuring parents receive clear, supportive information about their child’s development before taking their baby home. This study has approval from the Social Research Ethics Committee, Log No: 2025-299.

Hear more about the study here form the CP-PAG:

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Ready to participate?

cLICK HERE TO COMPLETE THE SURVEY

Why is this study being done?

We want to know if you received adequate information / education about the neurodevelopment of your infant and potential signs that would indicate further assessment, investigation and support services may be required.

Who is it for?

Parents/ Guardians who are over the age of 18yrs and have children with a diagnosis of CP.

What are the benefits and risks of participating in this study?.

There are minimal risks/ benefits associated with participation however, a benefit may be that by sharing your experience, you can help us ensure we create/ provide useful resources for future families.

What is the time commitment?

This online survey will take approx. 5-15 minutes to complete.

What will happen to the results of this study?

The results of this study will be published in academic journals and presented at scientific meetings. As it is an anonymous survey participants cannot be identified in any reports or publications.